YouCan’s First Wellbeing Weekend

‘Absolutely fantastic weekend. You ladies are amazing and I feel so much better already. You have helped me face up to what I need and I can’t wait to take the next steps to my ‘new normal’ life! Thank you so much’

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Doing anything for the first time can be pretty scary. Exciting too. But primarily, scary! We held our first ever Wellbeing Weekend and we just didn’t know what to expect. Would everyone enjoy it? Would they get anything out of it? The answers, it would seem, were ‘yes’ and ‘yes’. Happy days.

Stourmouth House, nr Canterbury was our beautiful home for the weekend and we welcomed eight young people to enjoy a couple of days filled with activities, therapies and spending time with people who understand.

We crammed in quite a lot to our weekend – a cookery class at the fabulous Chequers Kitchen, yoga & meditation sessions, reiki, reflexology, a beauty workshop courtesy of the beautiful Andrea Pellegrini and a class in NLP positive thinking. Combined with home cooked food (thank you Mandy – we all need that nut roast recipe by the way. Soooo good!) and the peace and beauty of our surroundings, it all added up to the most wonderful few days.

Of course, the most important thing for us was that our guests really felt they had benefitted from their time away. There’s another scary thing about a first time …asking people if it was okay?! We so want to make sure that we get it right for everyone. Will have to be honest here and own up to a few emotional tears when we read some of our guests comments. We feel like we’re on the right track, that people took away a lot of positives from their experiences and had the chance to try things they might otherwise not have done.

Cancer. It’s a difficult word to hear or say and sound positive. The impact on individuals, family and friends can be devastating and finding a way to reclaim a positive future, to leave cancer behind and move forward is difficult. If there is one thing that stands out for us about our first Wellbeing Weekend is that we heard people say that it gave them more belief that they could have that positive future, that there is help and support to feel better about themselves and their lives.

So our first Wellbeing Weekend won’t be our last. There will be plenty more and we’re already planning another couple for the near future. So if you, or someone you know, feel like you might enjoy a few days with us then please get in touch!

A huge thank you to the wonderful team of people who helped us over the weekend : Mandy Thacker, Debbie Kinghorn, Andrea Pellegrini, Maggie Kissane, Angela Davies, Jenni Campbell, Chequers Kitchen, Andy Hayward and Tesco!

 

 

What Yoga Has Taught Me – Ashton Howard

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Ashton’s Story

On the 13th January 2014, I was diagnosed with Acute Lymphoblastic Leukaemia, my life as I knew it immediately came crashing to a halt. I was admitted to hospital the following day where I was put into isolation for over 6 weeks and began an intensive 10 month chemotherapy regime. I was forced to follow a strict neutropenic diet due to my weakened immune system, this was to stop me contracting infections which basically meant anything fresh and healthy was a no go. I struggled to stomache the hideous hospital food which I’m sure made me feel sicker than the chemo cocktails themselves.

Having always been a health conscious person I felt let down by my body and frustrated that this had happened to me, however as my consultant informed me there is no ‘rhyme or reason’ as to why I got this and I was just simply unlucky. As I always say I’m the luckiest, unlucky person alive!

I am slowly getting my life back on track and learning to repair and restore my mind and body back to good health. It’s my belief that my diagnosis was a wake up call to change and in some strange way I feel lucky to have been given this opportunity to transform my life.

What Yoga Has Taught Me

I have always enjoyed yoga even before my diagnosis I used to attend weekly classes however back then I just used to go through the motions, It never really resonated with me like it does now and I’ve realised that’s because I was never fully present. My mind would still be racing around at a million miles per hour however falling ill forced me to slow down and really appreciate many of the amazing healing benefits that yoga has to offer.

For the last couple of years my life has been hugely restricted and in the hands of my doctors, I have often felt trapped and a prisoner in my own body which has been extremely frustrating. Practising yoga enables me to feel like I can take a bit of that control back.

Yoga involves working with breathing (pranayama), stretching exercises, postures (asanas) and meditation. All of which enable me to develop a greater sense of well being by directing my attention inward and connecting with the breath, allowing me to become present. Working with my body, mind and soul together, has helped me embrace my situation, bringing balance and clarity back into my life.

My overactive mind has a tendency to seek out worst-case scenarios, and so I often find myself living in a place of fear. My yoga practice creates the space for me to release this and let go of my worries. It is proven that Yoga has a calming effect on the body and many poses have a stress relieving effect. For example a twist posture is great for wringing out anger, which is often held in our inner organs, especially the liver.

My treatment often makes me feel fatigued but I have found that practising yoga helps restore my energy levels, it has helped me regain my confidence in my bodies ability and focus on slowly building my strength back up both physically and mentally.

I have discovered there are many different styles of yoga which I enjoy including Hatha, Ashtanga and Kundalini. However I was recently introduced to restorative yin yoga which I would highly recommend to anyone going through treatment or for those days when you’re lacking energy. Yin yoga is a simple, quiet practice deeply healing and nourishing. It is a more meditative approach where you hold the pose for a longer length of time while focusing on the breath.

I’m definitely not as strong or supple as I used to be or would like to be, but I have to respect my body and show it compassion as it has been through an awful lot. At times I have felt let down and angry that this happened to me but yoga reminds me to appreciate each breath and every pose that I can do.

Yoga offers so many amazing benefits from relieving joint and muscle aches, clearing out toxins and boosting the immune system the list goes on. I enjoy each challenge it brings but most importantly yoga has given me the tools to reconnect and make peace with my body, and now every time I step upon my mat I feel truly grateful.

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http://www.positivelythirteen.com

 

 

Exercise & Cancer

Natalie is keen for us all to embrace the energetic and rounds us all up for a thirty minute brisk walk around the block every day, insisting that we will feel better for the effort. She has no qualms about sending us out under dark and heavy skies and ignores our shivering at the thought of venturing out into temperatures that even a polar bear would consider inhospitable! And yet, she’s right. Once the trainers are on and the thermal layers are secured (woolly hats optional) it becomes rather an energising and, dare I say, enjoyable half an hour.

We all know exercise is good for us (even when we complain about doing it) but there have been a whole lot of reports in the media over recent weeks about the benefits of being physically active when it comes to cancer.   According to research carried out by Macmillan, physical activity can …

  • improve or prevent the decline in physical function without increasing tiredness (fatigue) during cancer treatment
  • improve aspects of psychological wellbeing during and after cancer treatment
  • help recover physical function and improve fatigue after cancer treatment

So it would seem it’s out with bed rest and feet up and in with a pair of decent trainers and a gym membership! Well maybe running a marathon is a little optimist right now, but a simple daily walk in the fresh air might just lift the spirits and give a little burst of unexpected energy?

Keeping on the physical activity theme, we’re busy organising our first fun run. We’re so grateful to the team at Leeds Castle for allowing us to hold the YouCan Run there on Sunday 25th September. There will be a choice of 5km and 10km routes and everyone who takes part will get a special YouCan Run t-shirt and a medal (of course) to celebrate their achievement and support. Entry forms and full info will be out very soon but if you, or anyone you know, would like to take part you can email us now and we’ll make sure you get the details as soon as they’re available. Do join us, we would love to see you there. hello@you-can.org.uk

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And finally, let me introduce you to our newest ambassador, Benn Barham…

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Ben is a professional golfer who has fought his own battle with cancer and has agreed to become an ambassador for YouCan. He will offer individual lessons to our young people, introducing them to the delights, and challenges, of golf. We are really looking forward to working with him and very grateful to him for offering his support to YouCan.

Charity Of The Year

So I’m back with entry number 2. It’s been another busy week at YouCan. As this is such a new charity there’s a million things to do. Okay, slight exaggeration, but you get the idea. We’ve met some amazing people who want to get involved – the most wonderful people who have skills ranging from nutritionists to yoga teachers, sports coaches to people who grow organic vegetables. Most of these have had real experiences with cancer and have found new and positive ways to deal with the effects that the disease has had on their lives. They want to share their thoughts with us and with young people in the hope that others might experience the same positive changes to their lives and their wellbeing. Some of them will be contributing to this blog by sharing their stories, their advice and even the odd rather delicious recipe  – you’ll find these on the nutrition page of this blog once we’ve tried them out!  Such a tough job sometimes🙂

A big part of what we do is, of course, getting people to support the work we do by fundraising for us and helping us raise awareness. It’s always exciting to meet people who tell us that they love what we do and want to be involved. This week we were delighted to be able to announce that the De Veres Devonport House Hotel in Greenwich have adopted YouCan as their local Charity of the Year for 2016. We all went off to the hotel to meet managers and staff, have our photos taken for the local press (check out our fabulous t-shirts) and tell everyone what we’ll be up to over the coming months. As well as some staff fundraising and organising events the hotel will host a workshop for some young people, which will work brilliantly for the young people that we are working with up in south London.

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On a slightly serious note, you may well have seen things in the press recently that don’t always paint charities in the best light. It’s a shame when the actions of the very few affect the vast majority who are trying their very best to make a difference to difficult lives and situations. Can I just assure you that here at YouCan we can promise you that we take our responsibility to both our supporters and service users very seriously – we have just been on a course to make sure we’re fully up to date with new fundraising regulations and will continue to ensure we comply with all charity legislation. We really do want to do the best we can for everyone involved with YouCan!

So onwards we go. Let’s see what the next week brings.

Sarah x

 

 

 

 

 

Who we are..

A blog. What a strange word! Short for weblog …an on-line diary where you can tell the world what you’ve been up to. Blogging – updating your blog, keeping people up to date with what’s going on. The world of the blog is new to me but I’ve volunteered to venture forth into this unknown territory and to attempt to give you some idea of what we all get up to here at YouCan. Perhaps you’ll get to know us a little better and we’ll be able to tell you why we do what we do, why it matters to us and how we want to try and make a difference to young lives that have been affected by cancer.

So, first up …let me introduce you to the team. For now, there’s just the four of us – Natalie, Terrie, Kate and myself (Sarah). We’ll start with Natalie because, in many ways, she’s our inspiration and through her we have seen and understood what a life impacted by cancer looks like. Natalie was diagnosed with breast cancer when she was in her 30s and, as we’ve all known her for a very long time, we have seen why the progress through this particular illness is so often called ‘a journey’. You’re set aboard the ship without map or compass and you’re at the mercy of the elements as you navigate your way to an unknown destination. Some of the storms are mighty rough and it gets lonely at times on that strange sea. But Natalie made it through and life begins again in a new place where she has to find her way again, discovering new things and a new way to live. She knows what it’s like to have lived with cancer, in a way that those that haven’t experienced it can never understand. So now she’s our ‘Captain’ (well, Head of Fundraising …but in our world that’s much the same thing) and we three others the Crew.

We three – Terrie, Kate and myself – all have official sounding titles but in reality we’re pretty much all doing whatever needs to be done. You might find us all manning stalls at a Christmas Fair (as we did in Rochester back in December), one us will be talking to a young person about their experiences with cancer while another is packing up t-shirts to send to a supporter who’s doing a 5km run for us at the weekend or someone will be meeting with a local oncology unit team while another is writing a blog entry (that’ll be me for now!). We’re a busy team and we love what we do.

My instructions for writing this blog are that I should tell you what we’ve been doing, update it regularly and only post interesting things. I can’t help feeling that my appointment as blog author might be slightly flawed. For one, we do so much that actually being able to choose the odd thing to write about is going to be tricky. And what’s interesting? I’m generally fascinated and intrigued by everything so who knows where this project might end up! So bear with me and we’ll wing it together. Already wondering what my next blog entry will be …

Sarah x

 

 

 

 

 

 

 

 

 

YouCan – Youth Cancer Support

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We are YouCan – a new project set up by The Children’s Development Trust who have been established since 2008.

We aim to support young people aged 10-30 whose lives have been impacted by cancer.

Where we are right now..

We’re just starting out on the YouCan journey. We’ve got lots of ideas and plans and lots of amazing people who want to be involved and really believe in what we’re trying to do and that’s to offer support to young people, aged between 10 and 30, who have had to face cancer in their lives.

Within the YouCan team we have experience of what it’s like to be young and be told you have cancer. We know that the medical care you receive is amazing. There are fantastic support agencies out there while you’re going through treatment and we’re pretty sure that they all make a positive difference to how you get through those horrible cancer-dominated days.

We want to be a part of the support that helps you find the positives in your life again. Our Get Togethers have been designed to help you see beyond cancer and to regain confidence. We’ll help you move forward into a life without cancer. You’ll be able to meet other young people who are experiencing the same thing. YouCan Get Togethers will cover positive thinking, fitness, nutrition and other aspects of well-being.

From summer 2016 we will be offering you – whether on your own or with your friends or family – the chance to have a break at our house on the Kent Coast. Who doesn’t feel better just being by the seaside? Short breaks and themed weekends are our aim and we are looking forward to welcoming visitors very soon.

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